I know it must seem strange for a man to start a campaign about breast cancer. I do not know any fancy names or medical terms nor do I know a lot about protein or hormone types but then again few people do until they get affect by it personally.
We will never know what we did to deserve this or even why this all happened to us. For one of our daughters to lose a breast to breast cancer at 25 is rare but for her twin sister to lose one six weeks later is unheard off. We had no family history of breast cancer and no idea that young woman of 25 could get it.
What we have witnessed over the past 19 months is the unbelievable difference in the quality of life for someone who had been misdiagnosed over breast cancer and someone who had an early detection.
One had her breast removed and some tests and then joined the queue for reconstruction. She was the lucky one, if you can say that, because she had been caught early and had precancerous cells.
The other had stage 3 cancer which had already spread to her lymph nodes. Her GP took a guess and got her diagnosis wrong and it took over 4 months to get to the breast Clinic for tests.
There were so many tests, so many fears and so many tears. Once they removed her breast she had to face the nightmare of chemo. She lost her hair, she didn’t need to shave under her arms and no longer plucked her eye brows, as she didn’t have any.
She hated looking in the mirror or at old photos and she found it hard whenever she saw her twin sister. As well as losing her hair the chemo not only killed all the bad cancerous cells it also killed all the good ones so her body started doing strange things and it wasn’t very nice.
Then came the herceptin with it’s own problems. Now that is all finished, her worries return because she feels she has lost all her protection and no one can guarantee it won’t come back.
All this just because someone took bad guess and got her diagnosis wrong.
I believe that most women instinctively know that something is not right, that’s why they go back.
If the doctors got to the lump whist it is still only pre-cancerous cells, then there would be no need for Radiotherapy, chemotherapy or any of the very expensive drugs they use.
The patient may still lose a breast and a few lymph nodes and even have to go through a few more tests but then they would join the queue for reconstruction.
More important because they only had pre-cancerous cells they will not be one of the 45,000 women who get breast cancer every year.
The money the NHS saves on the treatment could go towards taking all the guess work out of the initial diagnosis.